Kaylee was diagnosed with a stage III favorable Wilms Tumor in June 2011. Wilms is a childhood kidney cancer that affects abt 600 kids in North America a year. She finished 6 months of treatment including surgery, chemotherapy, and radiation. In June of 2012 we found a recurrence in her lung through a routine CT scan, and are now starting the process over again. Although always a little behind, this blog is to document her story, for her, to remember the trials and blessings that have come from her diagnosis, and so she always knows what a brave little girl she is.

Tuesday, November 29, 2011

Rockstar Treatment

Look at all the medicine we were giving out to all you kids when you were all sick at once!

It's one thing to have cancer, but when you get sick when you have cancer people really step into action.  Anytime you get a fever of a mere 101 it's doctors orders to head straight to the ER.  We don't want any infections so we do it as a precaution.  Well, I knew when we heard that, that we've never gone six months without a sickness plauging the family at some level. So it was no surprise when you caught a virus from your siblings and the fever began to creep up.  There was something comforting in knowing you siblings had it first, and it was nothing serious, but still we went to the ER as we were directed. 

Even though I knew it was the same virus your siblings had, I was worried your blood counts would be too low to let you leave and sometimes it can take up to a week before your blood counts get back to normal.  I was not excited about the thought of staying in the hospital for a week.  When we got there, I was expecting to muscle around the staff to get us out of the waiting room and in to see a doctor, but it turns out, when a cute little baldie comes in wearing a mask, it's like Taylor Swift just walked in the building!  They treated us like royalty.  We walked right into a room (and i have been to the ER on a weekend before. . . that NEVER happens)! They took us through back hallways and got all your tests done  STAT.  They even brought you food (that never happens either).  I could really get used to this kind of medical treatment. 

They said you looked good, and your counts were high enough to go home.  They gave you some IV antibiotics just to be safe, and sent you home.  Of course, you don't get off that easy, the Oncologist gave you medicine the next time he saw you to make sure it didn't get worse.  And more medicine on top of what you already take, well. . . that did not get you very excited.  . .
Yummy!

One of these days we will go to the ER and we will just be regular folks, and we will sit there for three hours on a holiday weekend, and they won't even know that one time we came in on a day just like that and we were treated like a rockstar!

4 comments:

  1. Such a brave little girl. Thank you for all of your posts. I saw this article and thought of you: http://eatocracy.cnn.com/2011/11/28/miracle-pill-takes-the-bitter-with-the-sweet/?iref=storysearch

    I am not sure if Kaylee is having trouble with a bad lingering taste after her chemo, but if so, these pills might help. I work at HHMI and one of our scientists did a seminar on them. They are essentially just compressed fruit powder, but they even make lemons taste like skittles. Obviously, her doc should be consulted first. Best wishes to you all!

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  2. I really enjoyed that story. Well done.

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  3. Hey Kim, I love reading these! And that picture of Kaylee...lol

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  4. Glad you didn't have to spend another week in the hospital!

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